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Representatives Debbie Dingell (MI-06), David Joyce (OH-14), and Michael McCaul (TX-10), introduced a resolution honoring May 17 as Diffuse Intrinsic Pontine Glioma (DIPG) Awareness Day to support expanded research for treatments and care for DIPG. DIPG is the leading cause of childhood death due to brain tumors, and less than one percent of its victims live more than five years after diagnosis. 

“It’s impossible to express the pain and devastation a family faces when their child is diagnosed with cancer. A battle with cancer at any age is hard, but especially for a child who should have a lifetime full of opportunities ahead of them,” said Dingell. “DIPG is responsible for the most pediatric brain tumor deaths each year and consistently has one of the lowest survival rates. We must redouble our efforts to confront childhood cancer with the urgency it requires by supporting efforts that will spread awareness and spur new research endeavors that inspire new treatments and cures. Together, we can show these young children and their families that they are not alone in their fight.”

“I am proud to introduce this bipartisan resolution to raise awareness for the more than 300 children in America suffering from this heartbreaking disease,” said Joyce. “DIPG is one of the deadliest forms of pediatric cancer, devastating children, parents, and families. We must work together to find a cure to ensure no child has to face this illness ever again.”

"With a heartbreaking survival rate of less than one percent, DIPG is considered the most lethal form of childhood cancer," said McCaul. "We must do everything in our power to change that and give these children the futures they deserve. As founder of the Childhood Cancer Caucus, I'm proud to join Rep. Dingell and others in raising awareness of DIPG as we work toward a cure. For the precious young lives diagnosed with this disease, there’s no time to waste."

"I am so very grateful to Congresswoman Dingell for not giving up on our kids by continuing to champion this resolution! They truly have no other voice or national visibility and I'm indebted to her for her unwavering commitment to them and to representing the interests of the American People. The most devastating part of the DIPG diagnosis experience for my 3-year old son Jack and our family was to hear that there were no solutions for him because the lives of children with brain cancer don't represent a good enough "investment incentive" to the powers that be. If no one knows, no one cares and nothing changes. Congresswoman Dingell won't let that happen!" said Janet Demeter, Founder of DIPG Advocacy Group.

This resolution aims to raise awareness and support efforts by the Carr family, who launched the Chad Tough Foundation in 2015 in honor of five-year-old Chad Carr of Ann Arbor, who lost his battle with DIPG in 2015; Jack's Angels Foundation that was launched in honor of three-year-old Jack Demeter who lost his battle with DIPG in 2012; and every family impacted by DIPG.

View the full text of the resolution here.